Three weeks ago, my left leg went ‘dead’, for the lack of a better term. I simply thought I was tired; after all RSD/CRPS sufferers can tell you your body can do some funny things. The next morning, it spread to my left leg into my arms and chest.
Within hours, I was paralyzed from the neck down.
Our local regional hospital did a wonderful job admitting me, running tests, and trying to figure out what was occurring. However, they were stunned at such a bizarre case and wanted to transfer me to Philadelphia. My husband was able to contact my RSD/CRPS specialist (at 10pm on a Sunday might I add…) who took on this unusual case.
Everything was settled. I would be taken as an emergency transfer to a major teaching hospital in Philly. The only problem was, neither a helicopter or an ambulance could get out because of the snowstorm that was occurring. I stayed put, with all kinds of monitors, until the next evening.
My specialist, who typically only deals with RSD/CRPS patients, knew almost immediately what paralyzed me from the neck down. Transverse myelitis. One in a million people get this disease.
Rare; rare indeed.
Prognosis was uncertain, as only 33% of people with transverse myelitis recover. After nearly two weeks in the hospital with treatments, I was able to regain enough function to go home.
Currently, I have most of the use of my arms and am walking with a walker. Both of which I am extremely thankful for. At home intense physical therapy starts this week.
As much as I love writing and posting here on the blog, the majority of my attention over the next month or so will be in recovery. Ideas are already rolling around in my mind and I am looking forward to being back. Soon. Very, very soon.
Here’s to HOPE!